Events

Clinical Trials Audio Event: One Burning Question (OBQ) 🔥

Friday, November 22, 2024 | 9:00 AM – 10:00 AM PT

"What economic and ethical considerations arise when individuals share their Health data with AI systems?"

Guest Experts:

Arpitha Parthasarathy, MSc, MBA, PhD,  Research Health Scientist - Clinical (Behavioral & Mental Health) (VACHS) at the U.S. Department of Veterans Affairs

Darshan Kulkarni, PharmaD, MS, Esq, Founder & Principal at The Kulkarni Law Firm

Moderator:

Christine Von Raesfeld, Founder & CEO, People with Empathy

Panelists:

Jennifer Bonfrisco, Clinical Trial Consultant, Patient Advocate, and Keynote Speaker

Téa Romero, MPsy, Alliance Management Director

Michael W. Young, Chief Marketing Officer, Consuli

Host:

Elizabeth Dreicer,  Co-Founder and CEO, Consuli

Maria Romero, Ambassador, Consuli_Inc.

Clinical Trials Audio Event: One Burning Question (OBQ) 🔥

Friday, March 22, 2024 | 9:00 AM – 10:00 AM PT

"How can both industry-sponsored research, and publicly-funded research, be designed to better serve patients?"

Guest Experts:

Ella Balasna, Patient Advocacy and Engagement Consultant

Lindsey Wahlstrom-Edwards, Partnerships Lead at Sano Genetics

Moderator:

Christine Von Raesfeld, Founder & CEO, People with Empathy

Panelists:

Jennifer Bonfrisco, Clinical Trial Consultant, Patient Advocate, and Keynote Speaker

Edye Edens, JD, Senior Research Compliance, First Class Solutions

Téa Romero MPsy, Alliance Management Director

Scott Schliebner, Clinical Development Executive

Mary Sophy Yohannan, Director of Medical Safety & Clinical Science @ Bolt Medical, Inc, Clinical Research Mentor/Speaker

Michael W. Young, Chief Marketing Officer, Consuli

Host:

Elizabeth Dreicer,  Co-Founder and CEO, Consuli

Maria Romero, Ambassador, Consuli_Inc.

Clinical Trials Audio Event: One Burning Question (OBQ) 🔥

Friday, January 19, 2024 | 9:00 AM – 10:00 AM PT

"What About Clinical Sites?  Including the site perspective on clinical drug development"

Guest Experts:

Arti Bhosale, Co-Founder and CEO at Sieve Health

Brad Hightower, CEO, Hightower Clinical

Moderator:

Scott Schliebner, Clinical Executive, Strategic Advisor, Board Member, Patient Advocate, Diversity Ally

Panelists:

Jennifer Bonfrisco, Clinical Trial Consultant, Patient Advocate, and Keynote Speaker

Edye Edens, JD, Senior Research Compliance, First Class Solutions

Téa Romero, Alliance Management Director

Christine Von Raesfeld, Founder & CEO, People with Empathy

Mary Sophy Yohannan, Director of Medical Safety & Clinical Science @ Bolt Medical, Inc, Clinical Research Mentor/Speaker

Michael W. Young, Chief Marketing Officer, Consuli

Host:

Elizabeth Dreicer  Co-Founder and CEO, Consuli

Clinical Trials Audio Event: One Burning Question (OBQ) 🔥

Friday, September 15, 2023 | 9:00 AM – 10:00 AM PT

“What are the practical barriers sites face in clinical trial operations that prevent greater impact in the JEDI principles for patients?”

Hosts:

Elizabeth Dreicer  Co-Founder and CEO, Consuli

Glynis Burgess Ambassador, Consuli

Panelists:

Edye Edens, JD, Senior Research Compliance, First Class Solutions

Daniel Fox, MPH, PhD, Clinical Research Site Advocate and Community Servant Leader

Judy Galindo, Executive Director & Co-owner of Sun Valley Research Center, Inc. and Co-Founder of Latinos in Clinical Research

Monica Cuitiva BS, BA, CRC, Co-Founder at LICR | The CRC Academy|The University of Clinical Research| The Clinical Research Circle | Social Investor | Clarity Clinical Research | Build Sites To Last | Save Our Sites (SOS)

Mary Sophy Yohannan MBBS, Galvanize Therapeutics; Clinical Trials Instructor, Clinical Research Fastrack; Research Mentor, JSHS

Michael W. Young, Fractional CMO, Consuli, Board Director for Patient Advocacy Groups

Téa Romero, Client Relationship Manager, Founder, Board Member, Neurodiversity Advocate, Survivor Advocate

Scott Schliebner, Clinical Executive, Strategic Advisor, Board Member, Patient Advocate, Diversity Ally

Christine Von Raesfeld, Founder & CEO, People with Empathy

Jennifer Bonfrisco,  CEO Corlexia & VP PaxMedica

Consuli Convo: Clinical Trials One Burning Question (OBQ) 🔥

Friday, August 25, 2023 | 9:00 AM – 10:00 AM PT

On LinkedIn Audio!

Hosts:

Elizabeth Dreicer  Co-Founder and CEO, Consuli

Glynis Burgess Ambassador, Consuli

Panelists:

Martin Mendoza, PhD Director of Health Equity – All of Us Research Program at National Institutes of Health

Christine Von Raesfeld, Founder & CEO, People with Empathy

Michael W. Young, Chief Marketing Officer, Consuli

Jennifer Bonfrisco, Clinical Trial Consultant, Patient Advocate, and Keynote Speaker

Edye Edens, JD, Senior Research Compliance, First Class Solutions

Téa Romero, Client Success Manager

Scott Schliebner, Clinical Executive, Strategic Advisor, Board Member, Patient Advocate, Diversity Ally

Mary Sophy Yohannan, Clinical Scientist @ Gala Therapeutics, Clinical Research Mentor/Speaker

Clinical Trials Audio Event: One Burning Question (OBQ) 🔥

Friday, July 21, 2023 | 9:00 AM – 10:00 AM PT

NOW on LinkedIn Audio!

“Is site technology the most important key to patient safety, data quality, and cost savings in today’s clinical trial environment?”

Hosts:

Elizabeth Dreicer  Co-Founder and CEO, Consuli

Glynis Burgess Ambassador, Consuli

Panelists:

Raymond Nomizu CEO of CRIO

Stefanie Palmer Business Development Executive, CRIO

Mary Sophy Yohannan, Clinical Scientist @ Gala Therapeutics, Clinical Research Mentor/Speaker

Michael W. Young, Chief Marketing Officer, Consuli

Téa Romero, Client Success Manager

Scott Schliebner, Clinical Executive, Strategic Advisor, Board Member, Patient Advocate, Diversity Ally

Christine Von Raesfeld, Founder & CEO, People with Empathy

Jennifer Bonfrisco, Clinical Trial Consultant, Patient Advocate, and Keynote Speaker

Edye Edens, JD, Senior Research Compliance, First Class Solutions

Clinical Trials Audio Event: One Burning Question (OBQ) 🔥

Friday, June 23, 2023 | 9:00 AM – 10:00 AM PT

NOW on LinkedIn Audio!

PRIDE MONTH

In recent years, there has been a growing awareness of the importance of diversity and inclusion in clinical research trials. However, potential enrollees who identify with the LGBTQIA community have often been overlooked in these efforts. This is particularly concerning given the significant health disparities that members of this community face, including higher rates of HIV/AIDS, mental health issues, and certain types of cancer. By failing to assure engagement of the LGBTQIA community in clinical research trials, we are essentially creating notable data deficits, and limiting access to potentially life-saving treatments and therapies.

During PRIDE month, it is important to have an open discussion about the necessity of including the LGBTQIA community in all types of clinical research trials. Sienna Moriarty and Liam Pascall, two special guest panelists, will provide valuable insights into why this inclusion is important, as well as the consequences of excluding the LGBTQIA community. Through this discussion, we hope to raise awareness and promote action towards greater real-world diversity and inclusion in clinical research trials, ultimately improving the health outcomes of all individuals, regardless of their sexual orientation or gender identity. 

We encourage individuals to join and submit questions in our Clinical Trials OBQ LinkedIn Group  before the event, as this will help shape the conversation and ensure that we address the most pressing concerns and issues related to LGBTQIA inclusion in clinical research trials. By working together and promoting greater diversity and inclusion, we can ensure that all individuals have access to the best possible healthcare and treatment options, regardless of their background or identity.

"Why is it important to include the LBGTQIA+ community in ALL clinical research trials?"

Panelists:

Liam Paschall (He/Him) - Transgender Inclusion Speaker and Consultant

Sienna Moriarty (They/Them), Project Manager - Cardiac Safety

Téa Romero, Client Success Manager

Mary Sophy Yohannan, Clinical Scientist @ Gala Therapeutics, Clinical Research Mentor/Speaker

Scott Schliebner, Clinical Executive, Strategic Advisor, Board Member, Patient Advocate, Diversity Ally

Edye Edens, JD, Senior Research Compliance, First Class Solutions

Christine Von Raesfeld, Founder & CEO, People with Empathy

Michael W. Young, Chief Marketing Officer, Consuli

Jennifer Bonfrisco, Clinical Trial Consultant, Patient Advocate, and Keynote Speaker

Clinical Trials Audio Event: One Burning Question (OBQ) 🔥

Friday, May 19, 2023 | 9:00 AM – 10:00 AM PT

NOW on LinkedIn Audio!

Mental health disorders are often poorly understood at the molecular level, making it difficult to develop targeted and effective treatments. Though Medication is the standard of care for most psychiatric conditions, many of the drugs used to treat mental illness have significant adverse reactions and side effects. Pharmacogenomics has the potential to improve the design and execution of mental health clinical trials, leading to more effective treatments and better outcomes for individuals with mental health conditions.

Join us for a lively discussion with guests Behnaz Sarrami MS, PharmD (Host PGx for Pharmacists), Reem Yunis, Ph.D. (Medable) and Paul Simmons (DBSA CA) as we discuss this month's OBQ:

"Are we crazy to not include Pharmacogenomics (PGx) in Mental Health Clinical Trials?"

Panelists:

Reem Yunis, PhD - VP, Digital Transformation Strategy, Medable, Inc.

Behnaz Sarrami, MS, PharmD, Medical Science Liaison - Pharmacogenomics (PGx)

Paul Simmons, Exec. Dir. DBSA

Téa Romero, Global Project & Program Management 

Edye Edens, JD, Senior Research Compliance, First Class Solutions

Jennifer Bonfrisco, Clinical Trial Consultant, Patient Advocate, and Keynote Speaker

Christine Von Raesfeld, Founder & CEO, People with Empathy

Scott Schliebner, Clinical Executive, Strategic Advisor, Board Member, Patient Advocate, Diversity Ally

Mary Sophy Yohannan, Clinical Scientist @ Gala Therapeutics, Clinical Research Mentor/Speaker

Michael W. Young, Chief Marketing Officer, Consuli

Clinical Trials Audio Event: One Burning Question (OBQ) 🔥

Friday, April 21, 2023 | 8:00 AM – 9:00 AM PT

NOW on LinkedIn Audio!

"How can we make clinical trials more accessible and practical for visually impaired patients?”

Panelists:

Jennifer Bonfrisco, Clinical Trial Consultant, Patient Advocate, and Keynote Speaker

Kristin Smedley, Keynote Speaker, Film Maker, Blindness/DEI/Rare Disease Leader, Best Selling Author

Téa Romero, Global Project & Program Management 

Michael W. Young, Chief Marketing Officer, Consuli

Edye Edens, JD, Senior Research Compliance, First Class Solutions

Christine Von Raesfeld, Founder & CEO, People with Empathy

Scott Schliebner, Clinical Executive, Strategic Advisor, Board Member, Patient Advocate, Diversity Ally

Mary Sophy Yohannan, Clinical Scientist @ Gala Therapeutics, Clinical Research Mentor/Speaker

Clinical Trials Audio Event: One Burning Question (OBQ) 🔥

Friday, March 31, 2023 | 9:00 AM – 10:00 AM PT

NOW on LinkedIn Audio!

"Fraud in Clinical Trials - what solutions will prevent Impact on Patient Trust?”

Panelists:

Michael Young, Chief Marketing Officer, Consuli

Sophy Yohannan, Clinical Scientist @ Gala Therapeutics, Clinical Research Mentor/Speaker

Téa Romero, Global Project & Program Management 

Christine Von Raesfeld, Founder & CEO, People with Empathy

Scott Schliebner, Clinical Executive, Strategic Advisor, Board Member, Patient Advocate, Diversity Ally

Jennifer Bonfrisco, Clinical Trial Consultant, Patient Advocate, and Keynote Speaker

Edye Edens, JD, Senior Research Compliance, First Class Solutions

Clinical Trials Clubhouse: One Burning Question (OBQ) 🔥

Thursday, December 1, 2022 | 10:30 AM – 12:00 NOON PT

Misconduct in Clinical Trials: Impact on Participation

Host: 

Julie Szmyd, Project Manager, Consuli 

Moderators:

Michael Young, Chief Marketing Officer, Consuli

Sophy Yohannan, Clinical Scientist @ Gala Therapeutics, Clinical Research Mentor/Speaker

Panelists:

Kartik Ramkumar, VP of Business Transformation & DEI

Edye Edens, JD, Senior Research Compliance, First Class Solutions

Christine Von Raesfeld, Founder & CEO, People with Empathy

Jennifer Bonfrisco, Clinical Trial Consultant, Patient Advocate, and Keynote Speaker

Scott Schliebner, Clinical Executive, Strategic Advisor, Board Member, Patient Advocate, Diversity Ally

Ryan Brown, Global Head Diversity in Clinical Trials Business Unit & Diversity in Clinical Trials Foundation

Clinical Trials Clubhouse: One Burning Question (OBQ) 🔥

Thursday, November 10, 2022 | 10:30 AM – 12:00 NOON PT

What are some methods you have or will employ to achieve inclusion of both the patients who are enrolled and the sites and companies involved in research?

Host: 

Julie Szmyd, Project Manager, Consuli 

Moderators:

Michael Young, Chief Marketing Officer, Consuli

Sophy Yohannan, Clinical Scientist @ Gala Therapeutics, Clinical Research Mentor/Speaker

Panelists:

Edye Edens, JD, Senior Research Compliance, First Class Solutions

Jennifer Bonfrisco, Clinical Trial Consultant, Patient Advocate, and Keynote Speaker

Kartik Ramkumar, VP of Business Transformation & DEI

Sandra Washington, Board Certified Patient Advocate

Lily Zheng, Diversity, Equity & Inclusion Strategist and Consultant

Antonio Tito, Supporting Basic Science, Clinical Research, Strategic Partnerships & Patient Recruitment efforts in minority populations.

Amy Sitnick, Vice President Marketing at Greenphire

Scott Schliebner, Clinical Executive, Strategic Advisor, Board Member, Patient Advocate, Diversity Ally

Christine Von Raesfeld, Founder & CEO, People with Empathy

Ryan Brown, Global Head Diversity in Clinical Trials Business Unit & Diversity in Clinical Trials Foundation

Drew Bustos, Chief Strategy and Marketing Officer at Science 37

Long COVID: Patients Meet Researchers

Wednesday, October 19, 2022 | 9:00 AM –10:30 AM PT

A discussion about the mysteries and burden of Long COVID with renowned researchers and Long COVID patients. Conversation includes the needs and types of clinical trials which could help.

Host: 

Julie Szmyd, Project Manager, Consuli 

Moderator:

Elizabeth Dreicer, Co-Founder and CEO, Consuli

Panelists:

Cynthia Adinig, Marketing and Diversity Policy Specialist, Long COVID Advocate & Equity Policy Advisor & long COVID survivor

Dr. Angela Reiersen, Child & Adolescent Psychiatrist and Epidemiologist, Long COVID Researcher & survivor

Marty Pack, Creative Producer of Wail of a Tale Productions

Mette Dyhrberg, Founder & CEO of Mymee

Andrea Berk, Clinical Operations Consultant

Dr. Nazanin Hosseinkhah, Physicist and Manager for Special Research Projects at VieLight Inc.

Dr. Alice Perlowski, Cardiologist, Journalist, Long COVID survivor and patient advocate

Clinical Trials Clubhouse: One Burning Question (OBQ) 🔥

Thursday, October 6, 2022 | 10:30 AM – 12:00 NOON PT

"How does patient and clinical trial professionals DIVERSITY impact data and outcomes in Clinical Trials and how can we achieve more diverse enrollment and engagement?"

Host: 

Julie Szmyd, Project Manager, Consuli 

Moderators:

Michael Young, Chief Marketing Officer, Consuli

Scott Schliebner, Clinical Executive, Strategic Advisor, Board Member, Patient Advocate, Diversity Ally

Panelists:

Kartik Ramkumar, VP of Business Transformation & DEI

Sandra Washington, Board Certified Patient Advocate

Ryan Brown, Global Head Diversity in Clinical Trials Business Unit

Jennifer Bonfrisco, Clinical Trial Consultant, Patient Advocate, and Keynote Speaker

Christine Von Raesfeld, Founder & CEO, People with Empathy

Long COVID: Patients Meet Researchers

Wednesday, September 14, 2022 | 9:00 AM –10:30 AM PT

A discussion about the mysteries and burden of Long COVID with renowned researchers and Long COVID patients. Conversation includes the needs and types of clinical trials which could help.

Host: 

Cynthia Adinig, Marketing and Diversity Policy Specialist, Long COVID Advocate & Equity Policy Advisor & long COVID survivor

Moderator:

Elizabeth Dreicer, Co-Founder and CEO, Consuli

Panelists:

Dr. Alice Perlowski, Cardiologist, Journalist, Long COVID survivor and patient advocate

Dr. Angela Reiersen, Child & Adolescent Psychiatrist and Epidemiologist, Long COVID Researcher & survivor

Dr. Rowshanak Hashemiyoon, Behavioral, Computational, and Clinical Neuroscientist and Long Covid patient

Dr. Mari Mitrani, Chief Science Officer & Co-Founder of Organicell

Rory Stanton, CEO, Aila Health

Marty Pack, Creative Producer of Wail of a Tale Productions

Mette Dyhrberg, Founder & CEO of Mymee

Clinical Trials Clubhouse: One Burning Question (OBQ) 🔥

Wednesday, August 31, 2022 | 10:30 AM – 12:00 NOON PT

"When it comes to Clinical Trials, we now agree that one of the four patient-centric JEDI goals of improved enrollment is achieving EQUITY. Different than Equality, EQUITY speaks to the fair compensation and valuation of each patient's contributed data, time, compliance with guidelines of participation, and adherence to the protocol. What does EQUITY in clinical trials mean to you and what can we do to assure real EQUITY for all participants?”

Host: 

Julie Szmyd, Project Manager, Consuli 

Moderators:

Michael Young, Chief Marketing Officer, Consuli

Sophy Yohannan, Clinical Scientist @ Gala Therapeutics, Clinical Research Mentor/Speaker

Panelists:

Edye Edens, JD, Senior Research Compliance, First Class Solutions

Jennifer Bonfrisco, Clinical Trial Consultant, Patient Advocate, and Keynote Speaker

Scott Schliebner, Clinical Executive, Strategic Advisor, Board Member, Patient Advocate, Diversity Ally

Pamela Johnson, IRB Administrator at Hartford Hospital

Christine Von Raesfeld, Founder & CEO, People with Empathy

How is solving Sickle Cell Disease related to Health Equity?

Thursday, July 28, 2022 | 4:30 PM –6:00 PM PT

Sickle Cell is a disease that affects nearly 100,000 people in the US with over 100 million people carrying the gene globally. Despite being the most common inherited blood disorder, there is a resounding lack of awareness and research is barely funded. Join us as we discuss the institutional issues within the healthcare system as it relates to sickle cell and join the fight for a more equitable future.

Host: 

Lauren Smith, Ambassador, Consuli  

Glynis Burgess, Ambassador, Consuli

Moderator:

Elizabeth Dreicer, Co-Founder and CEO, Consuli

Panelists:

Donna Sullivan, Pain Management Advocate

Gregory Kato, Executive Director and Global Product Lead at CSL Behring

Georgene Glass, Founder & CEO of Dreamsickle Kids

Michelle Nelson, Co-creator Sickle Cell Foundation

Joacy Gerard Mathias, Epidemiologist, Sickle Cell Disease Researcher, Racial Equity Champion, #WomenScientists 

Rao Lee, Sickle Cell Advocate

Shakiera Wesley, Sickle Cell Advocate and Mom

Long COVID: Patients Meet Researchers

Wednesday, July 20, 2022 | 9:00 AM –10:30 AM PT

A discussion about the mysteries and burden of Long COVID with renowned researchers and Long COVID patients. Conversation includes the needs and types of clinical trials which could help.

Host:

Julie Szmyd, Project Manager, Consuli

Moderator:

Elizabeth Dreicer, Co-Founder and CEO, Consuli

Panelists:

Dr. Alice Perlowski, Cardiologist, Journalist, Long COVID survivor and patient advocate

Dr. Angela Reiersen, Child & Adolescent Psychiatrist and Epidemiologist, Long COVID Researcher & survivor

Cynthia Adinig, Marketing and Diversity Policy Specialist, Long COVID Advocate & Equity Policy Advisor & long COVID survivor

Elle Seibert, Registry Data Manager, You + ME Registry and Biobank, Solve ME/CFS Initiative, Long COVID survivor

Katie Kat Gledhill, Long COVID Survivor and Advocate

Marty Pack, Creative Producer of Wail of a Tale Productions,

Delainne Bond, Founder of covidCare Group

Chris Nowak, Lead Architect, MyDataHelps Platform

Michelle Van Kreidt, Long COVID Survivor

Charlie Mccone, Long COVID Patient Advocate

Clinical Trials Clubhouse: One Burning Question (OBQ) 🔥

Thursday, July 7, 2022 | 10:30 AM – 12:00 NOON PT

After our Clinical Trials OBQ last month, we submitted a crowdsourced response to FDA’s April 2022 draft guidance regarding Diversity in Clinical Trials. Our next aim is to start to define success in this endeavor by examining JEDI (Justice, Equity, Diversity & Inclusion) in Clinical Trials. For July, let’s start with Justice. How can clinical trial design and operation ensure equitable patient selection, uphold patients’ rights and improve data transparency?

Host: 

Julie Szmyd, Project Manager, Consuli 

Moderators:

Michael Young, Chief Marketing Officer, Consuli

Sophy Yohannan, Clinical Scientist @ Gala Therapeutics, Clinical Research Mentor/Speaker

Panelists:

Edye Edens, JD, Senior Research Compliance, First Class Solutions

Jennifer Bonfrisco, Clinical Trial Consultant, Patient Advocate, and Keynote Speaker

Brittany Sloan, Director at Black Research Matters

Jane Myles, Vice President of Clinical Trial Innovation at Curebase

Justin Gundelach, Mayo Clinic; Manager of Biomedical Research (Clinical | Translational | Lab | Informatics)

Bradley P Hightower, CCRC. Founder, Hightower Clinical Trial Services

Amy Sitnick, Vice President Marketing at Greenphire

Scott Schliebner, Clinical Executive, Strategic Advisor, Board Member, Patient Advocate, Diversity Ally

Sol Chen, Former Co-Founder of Clara Health

How is solving Sickle Cell Disease related to Health Equity?

Thursday, June 23, 2022 | 4:30 PM –6:00 PM PT

Sickle Cell is a disease that affects nearly 100,000 people in the US with over 100 million people carrying the gene globally. Despite being the most common inherited blood disorder, there is a resounding lack of awareness and research is barely funded. Join us as we discuss the institutional issues within the healthcare system as it relates to sickle cell and join the fight for a more equitable future.

Host: 

Spencer Gurley, Ambassador, Consuli 

Glynis Burgess, Ambassador, Consuli

Moderator:

Elizabeth Dreicer, Co-Founder and CEO, Consuli

Panelists:

Shakiera Wesley, Sickle Cell Advocate and Mom

Brenda Green, Founder and CEO of the B Strong Group

Shantana Cooper, ER Nurse and Sickle Cell Advocate

Brionna Johnson, Mother of a Sickle Cell Warrior and Sickle Cell Advocate

Monica Rockwell, Sickle Cell Patient Advocate

Maya Bloomberg, Hematology Nurse Practitioner

Gregory Kato, Executive Director and Global Product Lead at CSL Behring

Pat McGann, Director of the Lifespan SickleCell Program of Rhode Island

Donna Sullivan, Director of Patient Advocacy, PathwaysToTrust.org

Long COVID: Patients Meet Researchers

Wednesday, June 15, 2022 | 9:00 AM –10:30 AM PT

A discussion about the mysteries and burden of Long COVID with renowned researchers and Long COVID patients. Conversation includes the needs and types of clinical trials which could help.

Host:

Julie Szmyd, Project Manager, Consuli

Moderator:

Elizabeth Dreicer, Co-Founder and CEO, Consuli

Panelists:

Dr. Alice Perlowski, Cardiologist, Journalist, Long COVID survivor and patient advocate

Dr. Mari Mitrani, Chief Science Officer & Co-Founder of Organicell

Dr. Rowshanak Hashemiyoon, Behavioral, Computational, and Clinical Neuroscientist and Long Covid patient

Dr. Angela Reiersen, Child & Adolescent Psychiatrist and Epidemiologist, Long COVID Researcher & survivor

Dr. Nancy Klimas, Professor of Medicine, Chair, Clinical Immunology, Nova Southeastern University

Maya Mcnulty, CEO of COVID Wellness, COVID Survivor and Educator

Katie Kat Gledhill, Long COVID Survivor and Advocate

Marty Pack, Creative Producer of Wail of a Tale Productions

Cynthia Adinig, Marketing and Diversity Policy Specialist, Long COVID Advocate & Equity Policy Advisor & long COVID survivor

Jody Brown Hall, Founder of Women's Long Haulers COVID Support Group and Long Covid patient

Data Dignity: Dealing you into the Data Economy

Wednesday, June 8, 2022 | 9:00 AM –10:30 AM PT

A discussion about the urgency and importance of DATA DIGNITY awareness and why NOW is the time to JOIN THE MOVEMENT and take control of our personal data as a social collective!

Host: 

Julie Szmyd, Project Manager, Consuli 

Moderator:

Elizabeth Dreicer, Co-Founder and CEO, Consuli

Panelists:

Alice Rathjen, Entrepreneur, CEO, DNA Compass

Christine Von Raesfeld, Founder & CEO, People with Empathy

Amin Iman, Project Contributor at Rally Ecosystem DAO

Jeff Klein, NonProfit Professional, Income and Wealth

Jenny Hedderman, State Risk Counsel

Heather Openshaw, Deradicalization Researcher

Travis Tran, Sr. Program Manager, Data Foundations for LinkedIn

Craig Talbert, Tech & Humanism Researcher and Author

Shefali Girish, Research Analyst at Aapti Institute

Victor Zelocualtecatl, Environmentalist, Tech and Sustainability Researcher

Clinical Trials Clubhouse: One Burning Question (OBQ) 🔥

Thursday, June 2, 2022 | 10:30 AM – 12:00 NOON PT

On April 13, the Food and Drug Administration (FDA) published a new draft guidance that, for the first time, recommends that sponsors of clinical trials for submission to FDA develop a proactive “Race and Ethnicity Diversity” plan for addressing diversity in the trial’s population. Comments are due back to FDA on June 13, 2022. What 3 specific recommendations would you make on this draft guidance? A summary is attached for your review.

Host: 

Julie Szmyd, Project Manager, Consuli 

Moderators:

Michael Young, Chief Marketing Officer, Consuli

Sophy Yohannan, Clinical Scientist @ Gala Therapeutics, Clinical Research Mentor/Speaker

Panelists:

Edye Edens, JD, Senior Research Compliance, First Class Solutions

Dr. Antonio Tito, Business Director at NURA Health Science

Elle Hamilton, SVP at Evoke KYNE

Sandra Washington, Board Certified Patient Advocate

Jennifer Bonfrisco, Clinical Trial Consultant, Patient Advocate, and Keynote Speaker

Doyin Famodimu, Clinical Operations, Legal studies

Pamela Johnson, IRB Administrator at Hartford Hospital

Ryan Brown, Global Head Diversity in Clinical Trials Business Unit

Scott Schliebner, Clinical Executive, Strategic Advisor, Board Member, Patient Advocate, Diversity Ally

How is solving Sickle Cell Disease related to Health Equity?

Thursday, May 26, 2022 | 4:30 PM –6:00 PM PT

Sickle Cell is a disease that affects nearly 100,000 people in the US with over 100 million people carrying the gene globally. Despite being the most common inherited blood disorder, there is a resounding lack of awareness and research is barely funded. Join us as we discuss the institutional issues within the healthcare system as it relates to sickle cell and join the fight for a more equitable future.

Host: 

Spencer Gurley, Ambassador, Consuli 

Glynis Burgess, Ambassador, Consuli

Moderator:

Elizabeth Dreicer, Co-Founder and CEO, Consuli

Panelists:

Rao Lee, Sickle Cell Advocate

Ufuoma Muwhen, Sickle Cell Advocate, CEO of NotJustYou

Maya Bloomberg, Hematology Nurse Practitioner

Racquel Ramsumair, Chair of the Board at Sickle Cell Advocate Board of Calgary

Shakiera Wesley, Sickle Cell Advocate and Mom

Chris Ruffin Jr., Sickle Cell Warrior and Advocate

Brenda Green, Founder and CEO of the B Strong Group

Shantana Cooper, ER Nurse and Sickle Cell Advocate

Brionna Johnson, Mother of a Sickle Cell Warrior and Sickle Cell Advocate

Ronisha Edwards-Elliott, Program Coordinator at Sickle Cell Readiness and Transition (STAR) Clinic

Monica Rockwell, Sickle Cell Patient Advocate

Long COVID: Patients Meet Researchers

Wednesday, May 18, 2022 | 9:00 AM –10:30 AM PT

A discussion about the mysteries and burden of Long COVID with renowned researchers and Long COVID patients. Conversation includes the needs and types of clinical trials which could help.

Host:

Julie Szmyd, Project Manager, Consuli

Moderator:

Elizabeth Dreicer, Co-Founder and CEO, Consuli

Panelists:

Dr. Alice Perlowski, Cardiologist, Journalist, Long COVID survivor and patient advocate

Dr. John Mattison, Former Chief Medical Information Officer and Assistant Medical Director, Kaiser Permanente

Dr. William Li, MD / Researcher, Physician, Scientist, Speaker and Author

Dr. Mari Mitrani, Chief Science Officer & Co-Founder of Organicell

Dr. Angela Reiersen, Child & Adolescent Psychiatrist and Epidemiologist, Long COVID Researcher & survivor

Cynthia Adinig, Marketing and Diversity Policy Specialist, Long COVID Advocate & Equity Policy Advisor & long COVID survivor

Maya Mcnulty, CEO of COVID Wellness, COVID Survivor and Educator

Cinzia Carlomagno, Strategic planning, Designer, Long COVID survivor and advocate

Adonis Muganuzi, Executive Director at the Young Africans Entrepreneurs Network & Global Goodwill Ambassador, Co-Founder of SAUTI YANGU Global Partner at Above the Standard

Michael Liskin, Wellness Based Leadership Development and Web 3 Community Based Online Learning

Clinical Trials Clubhouse: One Burning Question (OBQ) 🔥

Thursday, May 5, 2022 | 10:30 AM – 12:00 NOON PT

"In the last month, the U.S. Food and Drug Administration issued new draft guidance to industry for developing plans to enroll more participants from underrepresented racial and ethnic populations in the U.S. into clinical trials.

This draft guidance, “Diversity Plans to Improve Enrollment of Participants from Underrepresented Racial and Ethnic Subgroups in Clinical Trials,” is really the first (mandate?) call to action to sponsors to remedy a long-standing issue. How do you see this changing what sponsors, sites, and patient recruiters will need to do? What upsides do you see?"

Host: 

Julie Szmyd, Project Manager, Consuli 

Moderators:

Michael Young, Chief Marketing Officer, Consuli

Sophy Yohannan, Clinical Scientist @ Gala Therapeutics, Clinical Research Mentor/Speaker

Talia Nikolao Hight, Clinical Trials Professional

Panelists:

Edye Edens, JD, Senior Research Compliance, First Class Solutions

Mark Campbell, Clinical Trial Innovator

Jennifer Bonfrisco, Clinical Trial Consultant, Patient Advocate, and Keynote Speaker

Dr. Jenicka Engler, Head of Enrollment

Drew Bustos, Chief Strategy and Marketing Officer at Science 37

How is solving Sickle Cell Disease related to Health Equity?

Thursday, April 28, 2022 | 4:30 PM –6:00 PM PT

Sickle Cell is a disease that affects nearly 100,000 people in the US with over 100 million people carrying the gene globally. Despite being the most common inherited blood disorder, there is a resounding lack of awareness and research is barely funded. Join us as we discuss the institutional issues within the healthcare system as it relates to sickle cell and join the fight for a more equitable future.

Host: 

Spencer Gurley, Ambassador, Consuli 

Glynis Burgess, Ambassador, Consuli

Moderator:

Elizabeth Dreicer, Co-Founder and CEO, Consuli

Panelists:

Michelle Nelson, Co-creator Sickle Cell Foundation

Rao Lee, Sickle Cell Advocate

Sophy Yohannan, Clinical Evaluation Scientist @ Boston Scientific

Jessica Jean-Jeune, Sickle Cell Advocate

How is solving Sickle Cell Disease related to Health Equity?

Thursday, April 21, 2022 | 4:30 PM –6:00 PM PT

Sickle Cell is a disease that affects nearly 100,000 people in the US with over 100 million people carrying the gene globally. Despite being the most common inherited blood disorder, there is a resounding lack of awareness and research is barely funded. Join us as we discuss the institutional issues within the healthcare system as it relates to sickle cell and join the fight for a more equitable future.

Host: 

Spencer Gurley, Ambassador, Consuli 

Glynis Burgess, Ambassador, Consuli

Moderator:

Elizabeth Dreicer, Co-Founder and CEO, Consuli

Panelists:

Michelle Nelson, Co-creator Sickle Cell Foundation

Brenda Green, CEO of the B Strong Group

Rao Lee, Sickle Cell Advocate

Shei Rhodes, Sickle Cell Warrior

Roz McCarthy, Sickle Cell Mom

Agnes Nsofwa, Executive Director of Australian Sickle Cell Advocacy

Long COVID: Patients Meet Researchers

Wednesday, April 20, 2022 | 9:00 AM –10:30 AM PT

A discussion about the mysteries and burden of Long COVID with renowned researchers and Long COVID patients. Conversation includes the needs and types of clinical trials which could help.

Host:

Julie Szmyd, Project Manager, Consuli

Moderator:

Elizabeth Dreicer, Co-Founder and CEO, Consuli

Panelists:

Dr. Alice Perlowski, Cardiologist, Journalist, Long COVID survivor and patient advocate

Dr. Mady Hornig, Psychiatrist, Associate Professor of Epidemiology at Columbia University's Mailman School of Public Health, Long COVID survivor

Vipul Shah, Pediatric Orthopedic Surgeon & COVID-19 research supporter

Dr. Mari Mitrani, Chief Science Officer & Co-Founder of Organicell

Dr. Robi Tamargo, Clinical Psychologist, Trama Specialist/EMDR, Schema Therapist, Long COVID survivor

Cedricia Thomas, Long COVID survivor

Mette Dyhrberg, Founder & CEO of Mymee

Cynthia Adinig, Marketing and Diversity Policy Specialist, Long COVID Advocate & Equity Policy Advisor & long COVID survivor

Cinzia Carlomagno, Strategic planning, Designer, Long COVID survivor and advocate

Elle Seibert, Registry Data Manager, You + ME Registry and Biobank, Solve ME/CFS Initiative, Long COVID survivor

Yan Leyfman, Director of Immunology Division of Global COVID-19 Taskforce

Phong Tran, Director of BioPharma Research BD

 Maya Mcnulty, CEO of COVID Wellness, COVID Survivor and Educator

How is solving Sickle Cell Disease related to Health Equity?

Thursday, April 14, 2022 | 4:30 PM –6:00 PM PT

Sickle Cell is a disease that affects nearly 100,000 people in the US with over 100 million people carrying the gene globally. Despite being the most common inherited blood disorder, there is a resounding lack of awareness and research is barely funded. Join us as we discuss the institutional issues within the healthcare system as it relates to sickle cell and join the fight for a more equitable future.

Host: 

Spencer Gurley, Ambassador, Consuli 

Glynis Burgess, Ambassador, Consuli

Moderator:

Elizabeth Dreicer, Co-Founder and CEO, Consuli

Panelists:

Ufuoma Muwhen, Sickle Cell Advocate, CEO of NotJustYou

Tolulope Afolabi, Sickle Cell Advocate, Pediatric & Covid Vaccination Nurse 

Michelle Nelson, Co-creator Sickle Cell Foundation

Racquel Ramsumair, Chair of the Board at Sickle Cell Advocate Board of Calgary

Brenda Green, Founder and CEO of the B Strong Group

Raquel Logan, Clinical Researcher

How is solving Sickle Cell Disease related to Health Equity?

Thursday, April 7, 2022 | 4:30 PM –6:00 PM PT

Host: 

Spencer Gurley, Ambassador, Consuli 

Glynis Burgess, Ambassador, Consuli

Moderator:

Elizabeth Dreicer, Co-Founder and CEO, Consuli

Panelists:

Ufuoma Muwhen, Sickle Cell Advocate, CEO of NotJustYou

Tolulope Afolabi, Sickle Cell Advocate, Pediatric & Covid Vaccination Nurse 

Michelle Nelson, Co-creator Sickle Cell Foundation

Kehinde Salami, Founder of Sicklekan, Award Winning Sickle Cell Advocate

Raquel Logan, Clinical Researcher

Brenda Green, Founder and CEO of the B Strong Group, Sickle Cell Advocate

Clinical Trials Clubhouse: One Burning Question (OBQ) 🔥

Thursday, April 7, 2022 | 10:30 AM – 12:00 NOON PT

"Our past month's lively discussion regarding equitable and effective compensation for trial enrollment has particular application to the category of Sickle Cell Anemia trials. Published research suggests general barriers to health-related research in Sickle Cell (general mistrust of research studies, emotional and practical concerns), barriers to trial design (randomization, geographic outreach, community dialogue), and mistrust of specific therapies and agents are blockades to successful enrollment. Considering this important disease focus, how can clinical trialists and patients create better pathways to moving new medicines and procedures forward for patients with Sickle Cell Anemia?”

Host: 

Julie Szmyd, Project Manager, Consuli 

Moderators:

Michael Young, Chief Marketing Officer, Consuli

Talia Nikolao Hight, Clinical Trials Professional

Sophy Yohannan, Clinical Evaluation Scientist @ Boston Scientific, Clinical Research Mentor/Speaker

Panelists:

Edye Edens, JD, Senior Research Compliance, First Class Solutions

Sandra Washington, Board Certified Patient Advocate

Justin Gundelach, Mayo Clinic; Manager of Biomedical Research (Clinical | Translational | Lab | Informatics)

Téa Romero, Global Project & Program Management 

Elle Hamilton, SVP at Evoke KYNE

Almenia Garvey, Sr. Director, Site Network Development, Western Europe at Oncacare

Jennifer Bonfrisco, CEO of Corlexia Clinical Research

Long COVID: Patients Meet Researchers

Wednesday, March 16, 2022 | 9:00 AM –10:30 AM PT

A discussion about the mysteries and burden of Long COVID with renowned researchers and Long COVID patients. Conversation includes the needs and types of clinical trials which could help.

Host:

Julie Szmyd, Project Manager, Consuli

Moderator:

Elizabeth Dreicer, Co-Founder and CEO, Consuli

Panelists:

Dr. Alice Perlowski, Cardiologist, Journalist, Long COVID survivor and patient advocate

Dr. Mady Hornig, Psychiatrist, Associate Professor of Epidemiology at Columbia University's Mailman School of Public Health, Long COVID survivor

Dr. Angela Reiersen, Child & Adolescent Psychiatrist and Epidemiologist, Long COVID Researcher & survivor

Dr. William Li, MD / Researcher, Physician, Scientist, Speaker and Author

Dr. Mari Mitrani, Chief Science Officer & Co-Founder of Organicell

Dr. Tamsin Lewis, Medical Director, Long COVID survivor

Cynthia Adinig, Marketing and Diversity Policy Specialist, Long COVID Advocate & Equity Policy Advisor & long COVID survivor

Cinzia Carlomagno, Strategic planning, Designer, Long COVID survivor and advocate

Nick Sarna, Long COVID survivor

Jody Britt, Long COVID advocate

Data Dignity: Dealing you into the Data Economy

Wednesday, March 9, 2022 | 9:00 AM –10:30 AM PT

A discussion about the urgency and importance of DATA DIGNITY awareness and why NOW is the time to JOIN THE MOVEMENT and take control of our personal data as a social collective!

Host: 

Julie Szmyd, Project Manager, Consuli 

Moderator:

Elizabeth Dreicer, Co-Founder and CEO, Consuli

Panelists:

Alice Rathjen, Entrepreneur, CEO, DNA Compass 

Matt Prewitt, President of RadicalxChange

Mitch Jackson, Web3 Lawyer

Morvareed Salehpour, Tech Lawyer at Salehpour Legal Consulting

Edgar Giesan, MIT computer science, AI researcher at University of Cambridge, ML/DL, VR/AR/XR, NLP systems, Neural Networks, Quantum Theory, Theoretical Physics, Mathematics 

Daniel Schauer, Data Scientist

Amir Abdi, Machine Learning Researcher

Christine Von Raesfeld, Founder & CEO, People with Empathy

Amin Iman, Project Contributor at Rally Ecosystem DAO

Heather Openshaw, Graduate Student at Presidio Graduate School

Clinical Trials Clubhouse: One Burning Question (OBQ) 🔥

Thursday, March 3, 2022 | 10:30 AM – 12:00 NOON PT

Most patients and researchers agree that clinical trial enrollees, particularly those in Real World Evidence (RWE) and complex individual data collection trials, should be compensated (not just reimbursed) for trial participation.

How can trial participants be fairly compensated so that a broader, more diverse population enrolls while creating real equity, particularly around the use of personal data?

What is "fair compensation"?

Host: 

Julie Szmyd, Project Manager, Consuli 

Moderators:

Michael Young, Chief Marketing Officer, Consuli

Talia Nikolao Hight, Clinical Trials Professional

Sophy Yohannan, Clinical Evaluation Scientist at Boston Scientific, Clinical Research Mentor/Speaker

Panelists:

Christine Von Raesfeld, Founder & CEO, People with Empathy

Edye Edens, JD, Senior Research Compliance, First Class Solutions

Sandra Washington, Board Certified Patient Advocate

Justin Gundelach, Mayo Clinic; Manager of Biomedical Research (Clinical | Translational | Lab | Informatics)

Sharray Reed, The Patient Care Strategist TM, Consultant

Matt Yousefzadeh, Research Assistant Professor at University of Minnesota

Téa Romero, Global Project & Program Management

Ben Won, Patent Attorney, General Counsel, Intellectual Property Strategy, Invention Development, Former Research Scientist

Long COVID: Patients Meet Researchers

Wednesday, February 16, 2022 | 9:00 AM –10:30 AM PT

A discussion about the mysteries and burden of Long COVID with renowned researchers and Long COVID patients. Conversation includes the needs and types of clinical trials which could help.

Host:

Julie Szmyd, Project Manager, Consuli

Moderator:

Elizabeth Dreicer, Co-Founder and CEO, Consuli

Panelists:

Dr. Alice Perlowski, Cardiologist, Journalist, Long COVID survivor and patient advocate

Dr. Mady Hornig, Psychiatrist, Associate Professor of Epidemiology at Columbia University's Mailman School of Public Health, Long COVID survivor

Angela Reiersen, Child & Adolescent Psychiatrist and Epidemiologist, Long COVID Researcher & survivor

Vipul Shah, Pediatric Orthopedic Surgeon & COVID-19 research supporter

Dr. Mari Mitrani, Chief Science Officer & Co-Founder of Organicell

Dr. Robi Tamargo, Clinical Psychologist, Trama Specialist/EMDR, Schema Therapist, Long COVID survivor

Jessica Lovett, Founder of ATX Covid Long Haulers, Long COVID survivor

Cynthia Adinig, Marketing and Diversity Policy Specialist, Long COVID Advocate & Equity Policy Advisor & long COVID survivor

Cinzia Carlomagno, Strategic planning, Designer, Long COVID survivor and advocate

Nick Sarna, Long COVID survivor

Data Dignity: Dealing you into the Data Economy

Wednesday, February 9, 2022 | 9:00 AM –10:30 AM PT

A discussion about the urgency and importance of DATA DIGNITY awareness and why NOW is the time to JOIN THE MOVEMENT and take control of our personal data as a social collective!

Host: 

Julie Szmyd, Project Manager, Consuli 

Moderator:

Elizabeth Dreicer, Co-Founder and CEO, Consuli

Panelists:

Alice Rathjen, Entrepreneur, CEO, DNA Compass

Matt Prewitt 

Lisa Berkley, Social & Environmental Justice, Compassionate Governance & Cities, UN SDGs, Women, Peace & Security, Corporate & Municipal Leadership, Housing Policy & Eviction Protection, Diversity, Equity, & Inclusion

Vinay Narayan, Senior Research Associate, Aapti Institute

Jonathan Scott, American Phone & Cloud Hacker Founder of @haktree,  at spyware_wiki, Human & Womens Rights - Free Speech Activist- Security Engineer at cLabs

Edgar Giesan, MIT computer science, AI researcher at University of Cambridge, ML/DL, VR/AR/XR, NLP systems, Neural Networks, Quantum Theory, Theoretical Physics, Mathematics 

Manuel Coichy, Founder & CEO of Senso Laboratories Inc.

Gavin Campbell

Isaac J, Entrepreneur & Podcaster, The Daily Archetype

Pati Ruiz, Research Scientist, Digital Promise

Christine Von Raesfeld, Founder & CEO, People with Empathy

Clinical Trials Clubhouse: One Burning Question (OBQ) 🔥

Thursday, February 3, 2022 | 10:30 AM – 12:00 NOON PT

Last month we explored issues of TRUST for clinical trial participants. This month’s OBQ focuses on what specific tactics have worked or would work to build trust between patient enrollees and their clinical sites, clinical protocols, and sponsors of these trials? How do diversity, equity, and inclusion issues impact TRUST building?

Host: 

Julie Szmyd, Project Manager, Consuli 

Moderators:

Michael Young, Chief Marketing Officer, Consuli

Talia Nikolao Hight, Clinical Trials Professional

Sophy Yohannan, Clinical Evaluation Scientist at Boston Scientific, Clinical Research Mentor/Speaker

Panelists:

David Ostrow, Medical scientist, Advocate for Therapeutic Uses of Cannabinoids and Other Plant-Derived Medications

Edye Edens, JD, Senior Research Compliance, First Class Solutions

Christine Von Raesfeld, Founder & CEO, People with Empathy

Bradley P Hightower, CCRC. Founder, Hightower Clinical Trial Services

Jaleeysa King, Senior Data Delivery Analyst at Greenphire

Ben Won, Patent Attorney, General Counsel, Intellectual Property Strategy, Invention Development, Former Research Scientist

Téa Romero, Global Project & Program Management

Caroline Mutiboko, Associate Project Manager, Lead CRA, Decentralised Trials Advocate, DCT, Virtual Clinical Trials

Long COVID: Patients Meet Researchers

Wednesday, January 19, 2022 | 9:00 AM –10:30 AM PT

A discussion about the mysteries and burden of Long COVID with renowned researchers and Long COVID patients. Conversation includes the needs and types of clinical trials which could help.

Host:

Julie Szmyd, Project Manager, Consuli

Moderator:

Elizabeth Dreicer, Co-Founder and CEO, Consuli

Panelists:

Dr. Mady Hornig, Psychiatrist, Associate Professor of Epidemiology at Columbia University's Mailman School of Public Health, Long COVID survivor

Dr. Angela Reiersen, Child & Adolescent Psychiatrist and Epidemiologist, Long COVID Researcher & survivor

Dr. Mari Mitrani, Chief Science Officer & Co-Founder of Organicell

Dr. Robi Tamargo, Clinical Psychologist, Trama Specialist/EMDR, Schema Therapist, Long COVID survivor

Bijan Najafi, BioEngineer, Professor at Baylor College of Medicine & Rice University, Director of Clinical Research

Elle Seibert, Registry Data Manager, You + ME Registry and Biobank, Solve ME/CFS Initiative, Long COVID survivor

Mette Dyhberg, Founder and CEO of Mymee

Millennia Lytle, Head of Coaching team at Mymee

Cynthia Adinig, Marketing and Diversity Policy Specialist, Long COVID Advocate & Equity Policy Advisor & long COVID survivor

Levern Rothwell, Founder at Curly Girls South Africa, Long COVID survivor

Data Dignity: Dealing you into the Data Economy

Wednesday, January 12, 2022 | 9:00 AM –10:30 AM PT

A discussion about the urgency and importance of DATA DIGNITY awareness and why NOW is the time to JOIN THE MOVEMENT and take control of our personal data as a social collective!

Host: 

Julie Szmyd, Project Manager, Consuli 

Moderator:

Elizabeth Dreicer, Co-Founder and CEO, Consuli

Panelists:

Spencer Gurley, Data Dignity Ambassador, Consuli 

Edgar Giesan, MIT computer science, AI researcher at University of Cambridge , ML/DL | VR/AR/XR | NLP systems | Neural Networks | Quantum Theory | Theoretical Physics | Mathematics 

Jonathan Scott, American Phone & Cloud Hacker Founder at haktree,  at spyware_wiki, Human & Womens Rights - Free Speech Activist- Security Engineer at cLabs

Heather Openshaw, MBA and MPA candidate at Presidio Graduate School

Christine Von Raesfeld, Founder & CEO, People with Empathy

Alice Rathjen, Entrepreneur, CEO, DNA Compass

Terence Craig,Technologist and Author

Vinay Narayan, Senior Research Associate, Aapti Institute

Linda MacDonald Glenn, Faculty and Founding Director, Center for Applied Values and Ethics in Advanced Technologies (UCSC)

Kevin Brehm, Network Security Specialist

Clinical Trials Clubhouse: One Burning Question (OBQ) 🔥

Thursday, January 6, 2022 | 10:30 AM – 12:00 NOON PT

It's often said that Clinical Trial participation is a RELATIONSHIP built on TRUST. How important is trust? What can be done to increase trust in trial design and conduct, especially among patient cohorts who are under-represented in clinical trials?

Host: 

Julie Szmyd, Project Manager, Consuli 

Moderators:

Michael Young, Chief Marketing Officer, Consuli

Heather Williams, Project Management and Customer Success, TrialStat

Talia Nikolao Hight, Clinical Trials Professional

Panelists:

David Ostrow, Medical scientist, Advocate for Therapeutic Uses of Cannabinoids and Other Plant-Derived Medications

Edye Edens, JD, Senior Research Compliance, First Class Solutions

Mark Campbell, Clinical Trial Innovator

Christine Von Raesfeld, Founder & CEO, People with Empathy

Sophy Yohannan, Clinical Evaluation Scientist @ Boston Scientific, Clinical Research Mentor/Speaker

Bradley P Hightower, CCRC. Founder, Hightower Clinical Trial Services

Lisa Marsh, Clinical Trial Subject Matter Expert | Mentor | Nurse Preceptor | Women in Healthcare Advocate

Jaleeysa King, Senior Data Delivery Analyst at Greenphire

Long COVID: Patients Meet Researchers

Wednesday, December 15, 2021 | 9:00 AM –10:30 AM PT

A discussion about the mysteries and burden of Long COVID with renowned researchers and Long COVID patients. Conversation includes the needs and types of clinical trials which could help.

Host:

Julie Szmyd, Project Manager, Consuli

Moderator:

Elizabeth Dreicer, Co-Founder and CEO, Consuli

Panelists:

Dr. Alice Perlowski, Cardiologist, Journalist, Long COVID survivor and patient advocate

Dr. Mari Mitrani, Chief Science Officer & Co-Founder of Organicell

Dr. Mady Hornig, Psychiatrist, Associate Professor of Epidemiology at Columbia University's Mailman School of Public Health, Long COVID survivor

Katie Kat Gledhill, Conservation Biologist, Long COVID survivor

Angela Reiersen, Child & Adolescent Psychiatrist and Epidemiologist, Long COVID Researcher & survivor

Leslie Phillips, Epidemiologist, Research leader, Consulting Director of Product Management and Operations for Solve M.E

Eric Ocelewski, CTO of Π ∩ ϟ., Cancer survivor, COVID-19 long hauler, Researcher and research supporter

Cynthia Adinig, Marketing and Diversity Policy Specialist, Long COVID Advocate & Equity Policy Advisor & long COVID survivor

Levern Rothwell, Founder at Curly Girls South Africa, Long COVID survivor

Cinzia Carlomagno, Strategic planning, Designer, Long COVID survivor and advocate

Geri Warnke, Long COVID survivor

Data Dignity: Dealing you into the Data Economy

Wednesday, December 8, 2021 | 9:00 AM –10:30 AM PT

A discussion about the urgency and importance of DATA DIGNITY awareness and why NOW is the time to JOIN THE MOVEMENT and take control of our personal data as a social collective!

Host: 

Julie Szmyd, Project Manager, Consuli 

Moderator:

Elizabeth Dreicer, Co-Founder and CEO, Consuli

Panelists:

Alice Rathjen, Entrepreneur, CEO, DNA Compass

Cody Hill, Director at the Data Union

Lisa Berkley, Social & Environmental justice • Compassionate Governance & Cities • UN SDGs • Women, Peace & Security • Corporate & municipal leadership • Housing policy & eviction protection • Diversity, equity, & inclusion

Linda MacDonald Glenn, Faculty and Founding Director, Center for Applied Values and Ethics in Advanced Technologies (UCSC)

David Koepsell, CEO & Co-Founder of EncrypGen

Vinay Narayan, Senior Research Associate, Aapti Institute

Jonathan Scott, American Phone & Cloud Hacker Founder at haktree,  at spyware_wiki, Human & Womens Rights - Free Speech Activist- Security Engineer at cLabs

Edgar Giesan, MIT computer science, AI researcher at University of Cambridge , ML/DL | VR/AR/XR | NLP systems | Neural Networks | Quantum Theory | Theoretical Physics | Mathematics 

Eric Ocelewski, CTO of Π ∩ ϟ., Cancer survivor, COVID-19 long hauler, Researcher and research supporter

Christine Von Raesfeld, EveryLife Foundation, Panelist (Centers for Medicare & Medicaid Services)

Manuel Coichy, Founder & CEO of Senso Laboratories Inc.

Samantha Scott, Financial Accounting Disrupter, Professional Services Expert, Cyber Governance Demystifier, Corporate Culture Catalyst

Spencer Gurley, Data Dignity Ambassador, Consuli 

Clinical Trials Clubhouse: One Burning Question (OBQ) 🔥

Thursday, December 2, 2021 | 10:30 AM – 12:00 NOON PT

"What are the emerging roles within biopharma companies to ensure, promote, and take responsibility for true health equity for all patients enrolling in clinical trials? Is this happening? And if so, is it being done effectively?”

Host: 

Julie Szmyd, Project Manager, Consuli 

Moderators:

Michael Young, Chief Marketing Officer, Consuli

Heather Williams, Project Management and Customer Success, TrialStat

Panelists:

Edye Edens, JD, Senior Research Compliance, First Class Solutions

Bradley P Hightower, CCRC. Founder, Hightower Clinical Trial Services

Amy Sitnick, VP, Marketing, Greenphire

Christine Von Raesfeld, EveryLife Foundation, Panelist (Centers for Medicare & Medicaid Services)

Justin Gundelach, Mayo Clinic; Manager of Biomedical Research (Clinical | Translational | Lab | Informatics)

Lisa Marsh, Clinical Trial Subject Matter Expert | Mentor | Nurse Preceptor | Women in Healthcare Advocate

Michelle Youngers, Start-Up Consulting in Operational Strategies and Talent Management

Matt Yousefzadeh, Research Assistant Professor at University of Minnesota

Long COVID: Patients Meet Researchers

Wednesday, November 17, 2021 | 9:00 AM –10:30 AM PT

A discussion about the mysteries and burden of Long COVID with renowned researchers and Long COVID patients. Conversation includes the needs and types of clinical trials which could help.

Host:

Julie Szmyd, Project Manager, Consuli

Moderator:

Elizabeth Dreicer, Co-Founder and CEO, Consuli

Panelists:

Dr. Alice Perlowski, Cardiologist, Journalist, Long COVID survivor and patient advocate

Dr. Linda Bluestein, Hypermobility MD, Physician

Dr. Vipul Shah, Pediatric Orthopedic Surgeon & COVID-19 research supporter

Katie Kat Gledhill, Conservation Biologist, Long COVID survivor

Mette Dyhberg, Founder and CEO of Mymee

Millennia Lytle, Head of Coaching team at Mymee

Beth Vanderkooi, Executive Director, Political and Communications Consulting, Long COVID survivor

Angela Reiersen, Child & Adolescent Psychiatrist and Epidemiologist, Long COVID Researcher & survivor

Eric Ocelewski, CTO of Π ∩ ϟ., Cancer survivor, COVID-19 long hauler, Researcher and research supporter

Cynthia Adinig, Marketing and Diversity Policy Specialist, Long COVID Advocate & Equity Policy Advisor & long COVID survivor

Data Dignity: Dealing you into the Data Economy

Wednesday, November 10, 2021 | 9:00 AM –10:30 AM PT

A discussion about the urgency and importance of DATA DIGNITY awareness and why NOW is the time to JOIN THE MOVEMENT and take control of our personal data as a social collective!

Host: 

Julie Szmyd, Project Manager, Consuli 

Moderator:

Elizabeth Dreicer, Co-Founder and CEO, Consuli

Panelists:

Amber Brandner, Co-creating an Inclusive New Economy, Facilitator, Futurist, Advocate, Strategic Advisor, Inclusion Liaison at SingularityU San Diego Chapter Leadership

Alice Rathjen, Entrepreneur, CEO, DNA Compass

David Lang, Strategic Philanthropy for Maximum Impact & Consuli, Inc. advisor

Morgan Templar, VP Data Management at HM Health Solutions, Data Governance, Business, Health

Cody Hill, Director at the Data Union

Devon White, Co-Founder, Secretary and Director of Marketing Global Brain data Foundation

Annalisa Eichholzer, Partnerships Manager at Open Data Institute

Lisa Berkeley, Social & Environmental justice • Compassionate Governance & Cities • UN SDGs • Women, Peace & Security • Corporate & municipal leadership • Housing policy & eviction protection • Diversity, equity, & inclusion

Soujanya Sridharan, Research Analyst at Aapti Institute (Bangalore, India)

Linda MacDonald Glenn, Faculty and Founding Director, Center for Applied Values and Ethics in Advanced Technologies (UCSC)

Clinical Trials Clubhouse: One Burning Question (OBQ) 🔥

Thursday, November 4, 2021 | 10:30 AM – 12:00 NOON PT

"In Aug. 2019, The National Library of Medicine (NLM) began a global modernization project for ClinicalTrials.gov. This modernization is planned to take 4 more years to complete. What are the most important improvements to this critical patient, public, and clinical development resource that need to be made? Why does this matter? Who needs to participate??

Host: 

Julie Szmyd, Project Manager, Consuli 

Moderators:

Michael Young, Chief Marketing Officer, Consuli

Talia Nikalao Hight, Clinical Trials Professional

Heather Williams, Project Management and Customer Success, TrialStat

Panelists:

Edye Edens, JD, Senior Research Compliance, First Class Solutions

Christine Von Raesfeld, EveryLife Foundation, Panelist (Centers for Medicare & Medicaid Services)

Elizabeth Esterl, Principal Clinical Researcher

Sophy Yohannan, Clinical Evaluation Scientist @ Boston Scientific, Clinical Research Mentor/Speaker

Lisa Marsh, Clinical Trial Subject Matter Expert | Mentor | Nurse Preceptor | Women in Healthcare Advocate

Lilly Stairs, Founder at Patient Authentic | Working at the intersection of patient engagement & marketing to build programs that empower and educate patients

Téa Romero, Global Project & Program Management

Justin Gundelach, Mayo Clinic; Manager of Biomedical Research (Clinical | Translational | Lab | Informatics)

Long COVID: Patients Meet Researchers

Wednesday, October 20, 2021 | 9:00 AM –10:30 AM PT

A discussion about the mysteries and burden of Long COVID with renowned researchers and Long COVID patients. Conversation includes the needs and types of clinical trials which could help.

Host:

Julie Szmyd, Project Manager, Consuli

Moderator:

Elizabeth Dreicer, Co-Founder and CEO, Consuli

Panelists:

Dr. Alice Perlowski, Cardiologist, Journalist, Long COVID survivor and patient advocate

Dr. Mari Mitrani, Chief Science Officer & Co-Founder of Organicell

Dr. Mady Hornig, Psychiatrist, Associate Professor of Epidemiology at Columbia University's Mailman School of Public Health, Long COVID survivor

Dr. Yan Leyfman, Director of Immunology Division of Covid-19 Task Force

Dr. Vipul Shah, Pediatric Orthopedic Surgeon & COVID-19 research supporter

Elle Seibert, Registry Data Manager, You + ME Registry and Biobank, Solve ME/CFS Initiative, Long COVID survivor

Katie Kat Gledhill, Conservation Biologist, Long COVID survivor

Mette Dyhberg, Founder and CEO of Mymee

Millennia Lytle, Head of Coaching team at Mymee

Data Dignity: Dealing you into the Data Economy

Wednesday, October 13, 2021 | 9:00 AM –10:30 AM PT

A discussion about the urgency and importance of DATA DIGNITY awareness and why NOW is the time to JOIN THE MOVEMENT and take control of our personal data as a social collective!

Host: 

Julie Szmyd, Project Manager, Consuli 

Moderator:

Elizabeth Dreicer, Co-Founder and CEO, Consuli

Panelists:

Alice Rathjen, Entrepreneur, CEO, DNA Compass

Gil Ruiz, Senior Advisor for Senator Kirsten E. Gillibrand (NY)

Christine Von Raesfeld, Founder and CEO of People with Empathy

Soujanya Sridharan, Research Analyst at Aapti Institute (Bangalore, India)

Kris Laudanski, President of the Society for HealthCare innovation

Morgan Templar, VP Data Management at HM Health Solutions, Data Governance, Business, Health

Cody Hill, Director at the Data Union

Devon White, Co-Founder, Secretary and Director of Marketing Global Brain data Foundation

Ryan Triplette, Founder of Canary Global Strategic, Co-Founder of the Global Brain Data Foundation, and Executive Director of the Coalition for Fair Software Licensing

Alan Butler, Executive Director and President of the Electronic Privacy Information Center (EPIC)

Linda MacDonald Glenn, Faculty and Founding Director, Center for Applied Values and Ethics in Advanced Technologies (UCSC)

David Lang, Capital development advisor for Consuli, Inc.

Clinical Trials Clubhouse: One Burning Question (OBQ) 🔥

Thursday, October 7, 2021 | 10:30 AM – 12:00 NOON PT

"Because this is not routinely done, how can we more systematically enrich the patient experience in clinical trial participation by giving more visibility and feedback on the data that is collected?"

Host: 

Julie Szmyd, Project Manager, Consuli 

Moderators:

Talia Nikalao Hight, Clinical Trials Professional

Heather Williams, Project Management and Customer Success, TrialStat

Panelists:

Edye Edens, JD, Senior Research Compliance, First Class Solutions

Christine Von Raesfeld, EveryLife Foundation, Panelist (Centers for Medicare & Medicaid Services)

David Ostrow, Medical scientist seeking solutions to inequalities in healthcare. Advocate for Therapeutic Uses of Cannabinoids and Other Plant-Derived Medications in Prevention and Treatment with CBCCERN.

Elizabeth Esterl, Principal Clinical Researcher

Christine Narro, Clinical Research Coordinator, USAF Technical Sergeant, 3F2 Education & Training Specialist; LICR Brand Ambassador

Tea Romero, Global Project & Program Management

Joe Kim, Senior Advisor, Translational Technology & Innovation | Digital Health

Long COVID: Patients Meet Researchers

Wednesday, September 15, 2021 | 9:00 AM –10:30 AM PT

A discussion about the mysteries and burden of Long COVID with renowned researchers and Long COVID patients. Conversation includes the needs and types of clinical trials which could help.

Host:

Arikah Gamble, Ambassador and Communications Coordinator, Consuli

Moderator:

Elizabeth Dreicer, Co-Founder and CEO, Consuli

Panelists:

Dr. Alice Perlowski, Cardiologist, Journalist, Long COVID survivor and patient advocate

Dr. Vipul Shah, Pediatric Orthopedic Surgeon & COVID-19 research supporter

Dr. Mari Mitrani, Chief Science Officer & Co-Founder of Organicell

Gustaf Kranck, CEO Founder of Vagus Health Ltd in Cambridge (UK)

Mette Dyhberg, Founder and CEO of Mymee

Millennia Lytle, Head of Coaching team at Mymee

Jessica Lovett, Founder of ATX Covid Long Haulers, Long COVID survivor

Beth Meier, Admin for ATX Covid Long Haulers

Elle Seibert, Registry Data Manager, You + ME Registry and Biobank, Solve ME/CFS Initiative, Long COVID survivor

Katie Gledhill, Conservation Biologist, Long COVID survivor

Angela Reiersen, Child & Adolescent Psychiatrist and Epidemiologist, Long COVID Researcher & survivor

Dr. W Michael Brode, Internal medicine physician at Dell Seton Medical Center

Dr. Avindra Nath, Director, Translational Neuroscience Center at National Institute of Neurological Disorders and Stroke (NINDS)

Data Dignity: Dealing you into the Data Economy

Wednesday, September 8, 2021 | 9:00 AM –10:30 AM PT

A discussion about the urgency and importance of DATA DIGNITY awareness and why NOW is the time to JOIN THE MOVEMENT and take control of our personal data as a social collective!

Host: 

Julie Szmyd, Project Manager, Consuli 

Moderator:

Elizabeth Dreicer, Co-Founder and CEO, Consuli

Panelists:

Mark Howard, Politics & Economics PhD Candidate (UC SC)

Sylive Delacroix, Professor of Law & Ethics (Birmingham Law School, UK)

David Koepsell, CEO & Co-Founder of EncrypGen

Kris Laudanski, President of the Society for HealthCare innovation 

Javier Creus, Founder of Ideas for Change (Barcelona, Spain)

Linda MacDonald Glenn, Faculty and Founding Director, Center for Applied Values and Ethics in Advanced Technologies (UCSC)

Alice Rathjen, Entrepreneur, CEO, DNA Compass 

Gil Ruiz, Senior Advisor for Senator Kirsten E. Gillibrand (NY)

Christine Von Raesfeld, Founder and CEO of People with Empathy

Soujanya Sridharan, Research Analyst at Aapti Institute (Bangalore, India)

Clinical Trials Clubhouse: One Burning Question (OBQ) 🔥

Thursday, September 2, 2021 | 10:30 AM – 12:00 NOON PT

"How do we bring visibility to trial participation to patients interested in CTs as a treatment option early in their disease progression, or for non-chronic health issues?"

Host: 

Julie Szmyd, Project Manager, Consuli 

Arikah Gamble, Ambassador, Consuli

Moderators:

Heather Williams, Project Management and Customer Success, TrialStat

Edye Edens, JD, Senior Research Compliance, First Class Solutions

Panelists:

Elizabeth Estrel, Principal Clinical Researcher

Amy Sitnick, VP, Marketing, Greenphire

Joe Gough, Senior Solutions Specialist, Medical Centers and University Accounts at Greenphire

Christine Von Raesfeld, EveryLife Foundation, Panelist (Centers for Medicare & Medicaid Services)

Mark Campbell, Clinical Trial Innovator

Michele Baptista, Director of Business Development at WIRB-Copernicus Group

Long COVID: Patients Meet Researchers

Wednesday, August 18, 2021 | 9:00 AM –10:30 AM PT

A discussion about the mysteries and burden of Long COVID with renowned researchers and Long COVID patients. Conversation includes the needs and types of clinical trials which could help.

Host:

Julie Szmyd, Project Manager, Consuli 

Arikah Gamble, Ambassador, Consuli

Moderator:

Elizabeth Dreicer, Co-Founder and CEO, Consuli

Panelists:

Dr. Alice Perlowski, Cardiologist, Journalist, Long COVID survivor and patient advocate

Dr. Vipul Shah, Pediatric Orthopedic Surgeon & COVID-19 research supporter

Dr. Yan Leyfman, Director of Immunology Division of Covid-19 Task Force

Rory Stanton, Founder and CEO of Alia Health

Delainne Bond, Founder & CEO of COVID Care Group

Katie Gledhill, Conservation Biologist, Long COVID survivor

Anne McCloskey, Long COVID survivor

Jessica Lovett, Long COVID survivor, founder of ATX Covid Long Haulers

Miranda Erlanson, CEO & Founder: Covid Survivors From Texas, Texas Covid-19 Longhaulers.

Amanda Finley, Manager of FB group Covid-19 Long-Haulers Discussion Group & 501(c)3 Covid-19 Long-Haulers Outreach

Data Dignity: Dealing you into the Data Economy

Wednesday, August 11, 2021 | 9:00 AM –10:30 AM PT

A discussion about the urgency and importance of DATA DIGNITY awareness and why NOW is the time to JOIN THE MOVEMENT and take control of our personal data as a social collective!

Host: 

Julie Szmyd, Project Manager, Consuli 

Moderator:

Elizabeth Dreicer, Co-Founder and CEO, Consuli

Panelists:

Linda MacDonald Glenn, Faculty and Founding Director, Center for Applied Values and Ethics in Advanced Technologies, UCSC

Gil Ruiz, Senior Advisor, The Office of Senator Kirsten E. Gillibrand

Andrew Young, Andrew Young is the Knowledge Director at The GovLab,

Sylvie Delacroix, Professor in Law and Ethics, Birmingham Law School

Susan Aaronson, Research Professor, Cross Disciplinary Fellow, and Director of the Digital Trade and Data Governance Hub at GWU

David Koepsell, Entrepreneur, author, philosopher, attorney, and educator

Parker Nolen, Director at PrimeIRB

Clinical Trials Clubhouse: One Burning Question (OBQ) 🔥

Thursday, August 5, 2021 | 10:30 AM – 12:00 NOON PT

"Despite efforts to make Clinical Trials more Patient-Centric, prospective enrollees still don't seem to have the necessary understanding of clinical trials or harbor various fears about participating. What needs to change and what can be done?"

Host: 

Julie Szmyd, Project Manager, Consuli 

Moderators:

Michael Young, Chief Marketing Officer, Consuli

Talia Nikolao Hight, Clinical Trials Professional

Heather Williams, Project Management and Customer Success, TrialStat

Panelists:

Christine Von Raesfeld, EveryLife Foundation, Panelist (Centers for Medicare & Medicaid Services)

David Ostrow, Medical scientist seeking solutions to inequalities in healthcare. Advocate for Therapeutic Uses of Cannabinoids and Other Plant-Derived Medications in Prevention and Treatment with CBCCERN.

Edye Edens - JD, Senior Research Compliance, First Class Solutions

Michele Baptista, Director Of Business Development at WIRB-Copernicus Group

Lindsey Summers, Director, Pharmaceutical Consulting Division (Recruiting, Business Development and Account Manager) - Greenkey

Téa Romero, Global Project & Program Management

Michelle Youngers, Start-Up Consulting in Operational Strategies and Talent Management

Long COVID: Patients Meet Researchers

Wednesday, July 21, 2021 | 9:00 AM –10:30 AM PT

A discussion about the mysteries and burden of Long COVID with renowned researchers and Long COVID patients. Conversation includes the needs and types of clinical trials which could help.

Host:

Julie Szmyd, Project Manager, Consuli 

Arikah Gamble, Ambassador, Consuli

Moderator:

Elizabeth Dreicer, Co-Founder and CEO, Consuli

Panelists:

Dr. Lucy Horton, founder of UC San Diego Health's post-acute COVID-19 telemedicine clinic

Dr. Hayman Buwaneswaran Buwan, Impact & Tech focussed Doctor, Creator of @Covid_Rehab on Twitter.

Dr. Alice Perlowski, Cardiologist, Journalist, Long COVID survivor and patient advocate

Angela Reiersen, Child & Adolescent Psychiatrist and Epidemiologist, Long COVID Researcher & survivor

Elle Seibert, Registry Data Manager, You + ME Registry and Biobank, Solve ME/CFS Initiative, Long COVID survivor

Data Dignity: Dealing you into the Data Economy

Thursday, July 15, 2021 | 9:00 AM –10:30 AM PT

A discussion about the urgency and importance of DATA DIGNITY awareness and why NOW is the time to JOIN THE MOVEMENT and take control of our personal data as a social collective!

Host: 

Julie Szmyd, Project Manager, Consuli 

Moderator:

Elizabeth Dreicer, Co-Founder and CEO, Consuli

Panelists:

Rob McCray, Board member and advisor to healthcare companies and nonprofits. HIMSS. MacroHealth. Alliance Healthcare Foundation. WellKom. Attorney/CEO/Founder/Banker

Linda MacDonald Glenn, Faculty and Founding Director, Center for Applied Values and Ethics in Advanced Technologies, UCSC

Parker Nolen, Ethicist, Mentor, Advocate, Compliance Professional

Gilbert Ruiz, Senior Advisor, The Office of Senator Kirsten E. Gillibrand

Tamara Zubaity, Cofounder and CEO of Barometer (formerly Vericrypt)

Kris Laudanski, Invenio Research Enterprise

Alice Rathjen, Entrepreneur, CEO, DNA Compass

Chris Cheng, Founder of Tech Talks Global on Clubhouse

Clinical Trials Clubhouse: One Burning Question (OBQ) 🔥

Thursday, July 8, 2021 | 10:30 AM – 12:00 PM PT

"When does the amount paid to clinical trial participants become Undue Influence? If $1Million lotteries work for COVID, will they work for trials?"

Host: 

Julie Szmyd, Project Manager, Consuli 

Moderators:

Michael Young, Chief Marketing Officer, Consuli

Talia Nikolao Hight, Clinical Trials Professional

Panelists:

Amy Sitnick, VP, Marketing, Greenphire

Christine Von Raesfeld, EveryLife Foundation, Panelist (Centers for Medicare & Medicaid Services)

David Ostrow, Medical scientist seeking solutions to inequalities in healthcare. Advocate for Therapeutic Uses of Cannabinoids and Other Plant-Derived Medications in Prevention and Treatment with CBCCERN.

Kris Sarajian, ClinOne (CRO) - VP, Marketing

Rod Raphael, Co-Founder/ Research Director at Investigators Research Group

Tammy Burke, RN, BSN - Associate Director, Clinical Trial Innovation, VERTEX Pharmaceuticals

Lindsey Summers, Director, Pharmaceutical Consulting Division (Recruiting, Business Development and Account Manager) - Greenkey

Upinder Grewal, DCT Lead for Tech and External Collaborations at Bayer Pharmaceuticals 

Michael Golden, VP, Savana Hospitals

Long COVID: Patients Meet Researchers

Wednesday, June 23, 2021 | 9:00 AM –10:30 AM PT

A discussion about the mysteries and burden of Long COVID with renowned researchers and Long COVID patients. Conversation includes the needs and types of clinical trials which could help.

Host:

Julie Szmyd, Project Manager, Consuli 

Moderator:

Elizabeth Dreicer, Co-Founder and CEO, Consuli

Panelists:

Dr. Lucy Horton, founder of UC San Diego Health's post-acute COVID-19 telemedicine clinic

Dr. Nancy Klimas, Professor of Medicine, Chair, Clinical Immunology, Nova Southeastern University

Dr. Linda Bluestein, Hypermobility MD, Physician

Dr. Alice Perlowski, Cardiologist, Journalist, Long COVID survivor and patient advocate

Dr. Angela Reiersen, Child & Adolescent Psychiatrist and Epidemiologist, Long COVID Researcher & survivor

Susan Mikolic, RN entrepreneur, Long COVID survivor

Data Dignity: Dealing you into the Data Economy

Thursday, June 10, 2021 | 9:00 AM –10:30 AM PT

A discussion about the urgency and importance of DATA DIGNITY awareness and why NOW is the time to JOIN THE MOVEMENT and take control of our personal data as a social collective!

Host: 

Julie Szmyd, Project Manager, Consuli 

Moderator:

Elizabeth Dreicer, Co-Founder and CEO, Consuli

Panelists:

Linda MacDonald Glenn, Faculty and Founding Director, Center for Applied Values and Ethics in Advanced Technologies, UCSC

Parker Nolan, Strategic Advisory for Media x Commerce

Michael Golden, VP, Savana Hospitals

Alice Rathjen, Entrepreneur, CEO, DNA Compass

Rob McCray, Board member and advisor to healthcare companies and nonprofits. HIMSS. MacroHealth. Alliance Healthcare Foundation. WellKom. Attorney/CEO/founder/banker

Gilbert Ruiz, Senior Advisor, The Office of Senator Kirsten E. Gillibrand

Long COVID: Patients Meet Researchers

Wednesday, June 9, 2021 | 9:00 AM –10:30 AM PT

A discussion about the mysteries and burden of Long COVID with renowned researchers and Long COVID patients. Conversation includes the needs and types of clinical trials which could help.

Host:

Julie Szmyd, Project Manager, Consuli 

Moderator:

Elizabeth Dreicer, Co-Founder and CEO, Consuli

Panelists:

Dr. Lucy Horton, University of California San Diego Health COVID-19 Telemedicine Clinic

Dr. David Putrino, Post-COVID Care Therapist, Mount Sinai Center

Dr. Angela Reiersen, Child & Adolescent Psychiatrist and Epidemiologist, Associate Professor of Psychiatry, Washington University in St. Louis, Long COVID Researcher & survivor

Dr. Sadie Whittaker, Chief Scientific Officer, Solve ME/CFS Initiative

Dr. Alice Perlowski, Cardiologist, Journalist, Long COVID survivor

Emily Burg, Operations Strategist, Long Covid survivor

Clinical Trials Clubhouse: One Burning Question (OBQ) 🔥

Friday, June 4, 2021 | 12:00 NOON – 1:00 PM PT

"Informed consent, whether written or eConsent, is too complex for patients. Are patients or trial protocols the problem?"

Host: 

Julie Szmyd, Project Manager, Consuli 

Moderators:

Michael Young, Chief Marketing Officer, Consuli

Talia Nikolao Hight, Clinical Trials Professional

Heather Williams, Project Management and Customer Success, TrialStat

Panelists:

Edye Edens, JD, Senior Research Compliance, First Class Solutions

Amy Sitnick, VP, Marketing, Greenphire

Effie Parks, Host of Once Upon a Gene

Tammy Burke, RN, BSN - Associate Director, Clinical Trial Innovation, VERTEX Pharmaceuticals

Christine Von Raesfeld, EveryLife Foundation, Panelist (Centers for Medicare & Medicaid Services)

Long COVID: Patients Meet Researchers

Wednesday, May 26, 2021 | 9:00 AM –10:30 AM PT

A discussion about the mysteries and burden of Long COVID with renowned researchers and Long COVID patients. Conversation includes the needs and types of clinical trials which could help.

Host:

Julie Szmyd, Project Manager, Consuli 

Moderator:

Elizabeth Dreicer, Co-Founder and CEO, Consuli

Panelists:

Dr. Lucy Horton, University of California San Diego Health COVID-19 Telemedicine Clinic

Dr. Angela Reiersen, Child & Adolescent Psychiatrist and Epidemiologist, Associate Professor of Psychiatry, Washington University in St. Louis, Long COVID Researcher & survivor

Dr. Alice Perlowski, Cardiologist, Journalist, Long COVID survivor

Tyler Curtis, Photographer, Long COVID survivor

Data Dignity: Dealing you into the Data Economy

Thursday, May 13, 2021 | 9:00 AM –10:30 AM PT

A discussion about the urgency and importance of DATA DIGNITY awareness and why NOW is the time to JOIN THE MOVEMENT and take control of our personal data as a social collective!

Host: 

Julie Szmyd, Project Manager, Consuli 

Moderator:

Elizabeth Dreicer, Co-Founder and CEO, Consuli

Panelists:

Terence Craig,Technologist and Author

Yvonne Wilson, Advisor, Author

Linda MacDonald Glenn, Faculty and Founding Director, Center for Applied Values and Ethics in Advanced Technologies, UCSC

Michael Golden, VP, Savana Hospitals

Alice Rathjen, Entrepreneur, CEO, DNA Compass

Long COVID: Patients Meet Researchers

Wednesday, May 12, 2021 | 9:00 AM –10:30 AM PT

A discussion about the mysteries and burden of Long COVID with renowned researchers and Long COVID patients. Conversation includes the needs and types of clinical trials which could help.

Host:

Julie Szmyd, Project Manager, Consuli 

Moderator:

Elizabeth Dreicer, Co-Founder and CEO, Consuli

Panelists:

Dr. Lucy Horton, University of California San Diego Health COVID-19 Telemedicine Clinic

Dr. Nancy Klimas, Professor of Medicine, Chair, Clinical Immunology, Nova Southeastern University

Kimberly MacPherson, MBA, MPH, Executive Director of Health Management, Co Director BCHT and SPH/Haas Faculty

Dr. Sadie Whittaker, Chief Scientific Officer, Solve ME/CFS Initiative

Dr. Tamsin Lewis, Medical Director, Long COVID survivor

Maya McNulty, Founder of UpTheBiz, President at Executive Tile, LLC, Author, Global Speaker, Long COVID survivor

Dr. Dona Murphey, Physician Scientist, Long COVID survivor

Long COVID: Patients Meet Researchers

Wednesday, April 28, 2021 | 9:00 AM –10:30 AM PT

A discussion about the mysteries and burden of Long COVID with renowned researchers and Long COVID patients. Conversation includes the needs and types of clinical trials which could help.

Host:

Julie Szmyd, Project Manager, Consuli 

Moderator:

Elizabeth Dreicer, Co-Founder and CEO, Consuli

Panelists:

Lucy Horton, MD, MPH, University of California San Diego Health COVID-19 Telemedicine Clinic

Mady Hornig, Psychiatrist, Associate Professor of Epidemiology at Columbia University's Mailman School of Public Health, Long COVID survivor

Alice Perlowski, Cardiologist, Journalist, Long COVID survivor

Tamsin Lewis, Medical Director, Long COVID survivor

Maya McNulty, Founder of UpTheBiz, President at Executive Tile, LLC, Author, Global Speaker, Long COVID survivor

Clinical Trials Clubhouse: One Burning Question (OBQ) 🔥

Friday, April 16, 2021 | 12:00 NOON – 1:00 PM PT

“Are payments to Patients for enrollment/participation in Clinical Trials the solution or do they create ethics and bias issues? What works?”

Host: 

Julie Szmyd, Project Manager, Consuli 

Moderators:

Michael Young, Chief Marketing Officer, Consuli

Heather Williams, Project Management and Customer Success, TrialStat

Panelists:

Amy Sitnick, VP, Marketing - Greenphire

Luke Gelinas, IRB Chair, Advarra

Christine Narro, Clinical Research Coordinator, USAF Technical Sergeant, 3F2 Education & Training Specialist; LICR Brand Ambassador

Christine Von Raesfeld, EveryLife Foundation, Panelist (Centers for Medicare & Medicaid Services)

Tammy Burke, RN, BSN - Sr. Dir Global Study Feasibility, Patient Recruitment and Retention, Sarepta Therapeutics

Mary Anne Rizk, PhD, Rizk Consulting

Data Dignity: Dealing you into the Data Economy

Thursday, April 15, 2021 | 9:00 AM –10:30 AM PT

A discussion about the urgency and importance of DATA DIGNITY awareness and why NOW is the time to JOIN THE MOVEMENT and take control of our personal data as a social collective!

Host: 

Julie Szmyd, Project Manager, Consuli 

Moderator:

Elizabeth Dreicer, Co-Founder and CEO, Consuli

Panelists:

Carmel Shachar, JD, MPH, Executive Director, Petrie-Flom Center for Health Law Policy, Biotechnology and Bioethics, Harvard Law School

Donald Jones, IMPACT Co-Founder, Chair, Virtual Medical Practice Collaborative at Digital Medicine Society

Amber Brandner, Co-creating an Inclusive New Economy, Facilitator, Futurist, Advocate, Strategic Advisor, Inclusion Liaison at SingularityU San Diego Chapter Leadership

Ethan Pierse, Entrepreneur, Founder at Borderless Ventures, Director of the CryptoAssets Institute

Long COVID: Patients Meet Researchers

Wednesday, April 14, 2021 | 9:00 AM –10:30 AM PT

A discussion about the mysteries and burden of Long COVID with renowned researchers and Long COVID patients. Conversation includes the needs and types of clinical trials which could help.

Host:

Julie Szmyd, Project Manager, Consuli 

Moderator:

Elizabeth Dreicer, Co-Founder and CEO, Consuli

Panelists:

Lucy Horton, MD, MPH, University of California San Diego Health COVID-19 Telemedicine Clinic

Valentino Paula, aka "Traknologist", Creative Director, Record Producer, Engineer, DJ, Founder, Bold/Vertical, Long COVID survivor

Beth Vanderkooi, Executive Director, Political and Communications Consulting, Long COVID survivor

Maya McNulty, Founder of UpTheBiz, President at Executive Tile, LLC, Author, Global Speaker, Long COVID survivor

Elle Seibert, Registry Data Manager, You + ME Registry and Biobank, Solve ME/CFS Initiative, Long COVID survivor

Fiona Lowenstein, Founder of Body Politic, Writer, speaker & producer, Long COVID survivor

Katie Kat Gledhill, Conservation Biologist, Long COVID survivor

Long COVID: Patients Meet Researchers

Wednesday, March 31, 2021 | 9:00 AM –10:30 AM PT

A discussion about the mysteries and burden of Long COVID with renowned researchers and Long COVID patients. Conversation includes the needs and types of clinical trials which could help.

Host:

Julie Szmyd, Project Manager, Consuli 

Moderator:

Elizabeth Dreicer, Co-Founder and CEO, Consuli

Panelists:

Lucy Horton, MD, MPH, University of California San Diego Health COVID-19 Telemedicine Clinic

Ethan Pierse, Founder of Borderless Ventures, Long COVID survivor

Emily Burg, Operations Strategist, Long Covid survivor

Katie Kat Gledhill, Conservation Biologist, Long COVID survivor

Michelle Lukezic, Founder, Chief Creative Office, Make Good Together

Clinical Trials Clubhouse: One Burning Question (OBQ) 🔥

Friday, March 26, 2021 | 9:30 AM – 10:30 AM PT

“Gamification and Competition in Clinical Trials and Among Sites: Great Idea or Too Many Ethical and IRB Concerns?”

Host: 

Julie Szmyd, Project Manager, Consuli 

Moderators:

Michael Young, Chief Marketing Officer, Consuli

Heather Williams, Project Management and Customer Success, TrialStat

Panelists:

Bill Byrom, VP, Product Intelligence and Positioning, Signant Health

Sergio Armani, VP, Head of Large Pharma and CRO Business Development, Advarra

Tammy Burke, RN, BSNSenior Director Global Study Feasibility, Patient Recruitment and Retention, Sarepta Therapeutics

Edye Edens, JD, Senior Research Compliance, First Class Solutions

Christine Narro, Clinical Research Coordinator, USAF Technical Sergeant, 3F2 Education & Training Specialist; LICR Brand Ambassador

MaryAnne Rizk, PhD, Managing Partner, Rizk Management Consulting

Long COVID: Patients Meet Researchers

Wednesday, March 24, 2021 | 9:00 AM –10:30 AM PT

A discussion about the mysteries and burden of Long COVID with renowned researchers and Long COVID patients. Conversation includes the needs and types of clinical trials which could help.

Host: 

Julie Szmyd, Project Manager, Consuli 

Moderator:

Elizabeth Dreicer, Co-Founder and CEO, Consuli

Panelists:

Sam Setareh, MD, MS, Founding member of the Post-COVID Clinic at Mount Sinai Heart

Fiona Lowenstein, Founder of Body Politic, Writer, speaker & producer, Long COVID survivor

Dona Murphey, Physician Scientist, Long COVID survivor

Shelby Hedgecock, Founder & CEO of Blooming Magnolia, Long COVID survivor

Chimére Smith, Educator, Writer and Thought Leader, Long COVID survivor

Tyler Curtis, Photographer, Long COVID survivor

Lauren Nichols, U.S. Diplomat, Health Justice Advocate, Long COVID survivor

Clinical Trials Clubhouse: One Burning Question (OBQ) 🔥

Friday, March 12, 2021 | 9:30 AM – 10:30 AM PT

"Gamification, AI, patient concierges, etc.:
What innovations in patient recruitment are working or can help sites?"

Host: 

Julie Szmyd, Project Manager, Consuli 

Moderators:

Talia Nikolao Hight, Clinical Trials Professional

Heather Williams, Project Management and Customer Success, TrialStat

Panelists:

James Doucette,Senior Director, Strategy and Insights, Access TCA

Tammy Burke, RN, BSNSenior Director Global Study Feasibility, Patient Recruitment and Retention, Sarepta Therapeutics

Princess Dauz, Clinical Research Nurse Manager, New Hope Research Development

Long COVID: Patients Meet Researchers

Wednesday, March 10, 2021 | 9:00 AM –10:30 AM PT

A discussion about the mysteries and burden of Long COVID with renowned researchers and Long COVID patients. Conversation includes the needs and types of clinical trials which could help.

Host: 

Julie Szmyd, Project Manager, Consuli 

Moderator:

Elizabeth Dreicer, Co-Founder and CEO, Consuli

Panelists:

Lucy Horton, MD, MPH, University of California San Diego Health COVID-19 Telemedicine Clinic

Dr. John Mattison, Former Chief Medical Information Officer and Assistant Medical Director, Kaiser Permanente

Fiona Lowenstein, Founder of Body Politic, Writer, speaker & producer, Long COVID survivor

Katie Kat Gledhill, Conservation Biologist

Ethan Pierse, Founder of Borderless Ventures, Long COVID survivor

Clinical Trials Clubhouse: One Burning Question (OBQ) 🔥

Friday, March 5, 2021 | 9:30 AM – 10:30 AM PT

"How can patients exchange opinions and observations about clinical trials with others in the trial? Is there a role for Industry to facilitate?"

Host: 

Julie Szmyd, Project Manager, Consuli 

Moderators:

Michael Young, Chief Marketing Officer, Consuli

Talia Nikolao Hight, Clinical Trials Professional

Heather Williams, Project Management and Customer Success, TrialStat

Panelists:

Sameer Tandon, Head, Vendor Alliances and Contracting, Novartis

Tammy Burke, RN, BSNSenior Director Global Study Feasibility, Patient Recruitment and Retention, Sarepta Therapeutics

Edye Edens, JD, Senior Research Compliance, First Class Solutions

Data Dignity: Dealing you into the Data Economy

Thursday, March 4, 2021 | 9:00 AM –10:30 AM PT

A discussion about the urgency and importance of DATA DIGNITY awareness and why NOW is the time to JOIN THE MOVEMENT and take control of our personal data as a social collective!

Host: 

Julie Szmyd, Project Manager, Consuli 

Moderator:

Elizabeth Dreicer, Co-Founder and CEO, Consuli

Panelists:

Terrence Craig, Technologist and Author

Ethan Pierse, Founder of Borderless Ventures, Long COVID survivor

Long COVID: Patients Meet Researchers

Wednesday, March 3, 2021 | 9:00 AM –10:30 AM PT

A discussion about the mysteries and burden of Long COVID with renowned researchers and Long COVID patients. Conversation includes the needs and types of clinical trials which could help.

Host:

Julie Szmyd, Project Manager, Consuli 

Moderator:

Elizabeth Dreicer, Co-Founder and CEO, Consuli

Panelists:

Dr. David Putrino,Post-COVID Care Therapist, Mount Sinai Center

Dr. John Mattison, Former Chief Medical Information Officer and Assistant Medical Director, Kaiser Permanente

Ethan Pierse, Founder of Borderless Ventures, Long COVID survivor

Alice Perlowski, Cardiologist

Alison Sbrana, Activist

Karla Monterroso, CEO, CODE2040

Long COVID: Patients Meet Researchers

Wednesday, February 17, 2021 | 8:30 AM –10:00 AM PT

A discussion about the mysteries and burden of Long COVID with renowned researchers and Long COVID patients. Conversation includes the needs and types of clinical trials which could help.

Host: 

Julie Szmyd, Project Manager, Consuli 

Moderator:

Elizabeth Dreicer, Co-Founder and CEO, Consuli

Panelists:

Lucy Horton, MD, MPH, University of California San Diego Health COVID-19 Telemedicine Clinic

Ethan Pierse, Founder of Borderless Ventures, Long COVID survivor

Shelby Hedgecock, Founder & CEO of Blooming Magnolia, Long COVID survivor

Tyler Curtis, Photographer, Long COVID survivor

Emily Burg, Operations Strategist, Long COVID survivor